Ana Sebrek’s one woman crusade to improve vision care in Croatia began the day her son, Noa, was diagnosed with Coats’ Disease. Coats’ Disease is a very rare eye disease. Ana discovered this herself as her son was only the second patient in Croatia to seek help for … Read More

Original Article: https://vgradu.hr/uz-noin-kaputic-i-know-the-glow-organizaciju-educiramo-se-o-rijetkog-bolesti/?fbclid=IwAR1ey7DFqCmeSP45Q0xmezRKxp-YEvddrtXSU6pwCc3nbzPX1nawbXy-gmY English translation Have you heard of Know the Glow, a global nonprofit leader who aims to raise awareness of a rare disease associated with blindness. By the way, the citizens of Velika Gorica have recently encounter

Diagnosis: Coats Disease Ana Sebrek is no different than any other mother trying to protect her child. “If I could bubble wrap my son, plus goggles and plus a helmet, I would!” she told Megan Webber, Co-Founder of KnowTheGlow. As Megan has learned from speaking … Read More

Written by his mother, Nina Barać Borna was born a healthy baby boy. When he was 4 months old, during bath time, I noticed a strange glow in his right pupil, but only when he looked to one side. I was bathing him with a … Read More